Featured

Awards

research

Kalanithi Award, 2nd Place: The Last Shower

Journal of Medical Internet Research, Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person’s Care: A Young Adult Perspective

Johns Hopkins University Press, Narrative Inquiry in Bioethics: Gaining a Heart But Missing Myself

Op-eds

End Well Project: Counting Up: Measuring What it Means to Grow Closer to Death

Why a Temporary Advance Directive Turned Out to be the Most Important Page in My Medical Record

The Mighty: Why I Don't Always Want Doctors to Tell Me What It 'Might' Be

The Illusion of Choice: Being Listed for Transplant

Social Media for Spoonies: A Double-Edged Sword

Project Baseline: How research helped map my family's heart health

In the News

The American Heart Association: Genetic problem led to a heart transplant at 24. Her new heart has a genetic problem, too.

SCOPE: Balancing online privacy and connection at Stanford Medicine X | Ed - “I knew my heart; it knew me”: A patient reflects on her disease and transplant

Video

The American Heart Association: 2019 Heart Ball Keynote Intro - The Patient Perspective

NBC Bay Area Nightly News: Third COVID Vaccine Dose Approved

Stanford Healthcare: Euan Ashley and His Patient Leilani Graham Discuss Heart Disease, Genetics, and Patient Stories

Stanford Medicine X: MEDX|ED 2017, Oral Ignite! X&Y - Everyone Included™ Episode 7: PCOR and CER - Why do we fail at CHANGE?